Patient Group Leader Workshop
Sign up to attend the Patient Group Leader Workshop hosted by the Foundation for Cell & Gene Medicine on Tuesday, February 25, 2020 from 9:00 a.m. – 11:30 a.m. at the Eaton Hotel in Washington DC.
This workshop, for patient organization leaders, will give you a chance to explore resources designed to educate your disease communities about cell and gene medicine.
Space is limited to 70 attendees-reserve your spot here. Read the invitation here.
Here is how we plan to spend our time together (we welcome your input on shaping the agenda):
Agenda
Pre-Meeting: Complete questionnaire (forthcoming) to help make our time together more productive and tailored to your needs
8:30 - 9:30 a.m.
Breakfast available
9:00 - 9:45 a.m.
Welcome
Presentation of new educational resources:
- HealingGenes.org
- Understanding Cell & Gene Therapy Clinical Trials
- “Equipped to Inform” Patient Advocate Toolkit
- Highlights of resources from other organizations
9:45 - 10:30 a.m.
Panel discussion of patient organization leaders “ahead of the curve” on educating their disease communities about cell and gene medicine to share their experience and offer helpful advice
10:30 a.m.
Workshop: Facilitators with experience developing educational resources for their community and/or test drives of the “Equipped to Inform” toolkit will help guide table discussions as patient group leaders:
- Explore the new cell and gene medicine educational resources
- Experiment with the digital toolkit
- Ask questions and provide feedback
- Work on a game plan for their respective organizations
11:30 a.m.
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