This event is for rare disease patient advocate organizations, non-profit stakeholders, industry professionals, and others who are looking to collaborate with other experts about health inequities.

ARM Foundation for Cell and Gene Medicine will have a virtual exhibitor booth at this event, where attendees will have access to our educational materials about cell and gene medicine. The Rare New England Annual Conference is primarily for patients and families to learn more about the latest developments in treatments for rare and complex diseases.

This event is for patient advocacy groups, government, industry, and academia to unlock new insights, network in a positive virtual environment, and discuss critical topics in the rare diseases and orphan products field.

This event is for patient advocacy groups, government, industry, and academia to unlock new insights, network in a positive virtual environment, and discuss critical topics in the rare diseases and orphan products field.

Sickle Cell Disease Association of America, Inc. (SCDAA) will hold its 49th Annual National Convention virtually on October 12-16, 2021.

ARM Foundation for Cell and Gene Medicine is presenting a Spotlight Session on the topic "Information Patients Want about Regenerative Medicine.” The Meeting on the Mesa conference is primarily for industry professionals, with some participation from non-profits and advocacy groups. the ARM Foundation for Cell and Gene Medicine spotlight session is for those who seek greater comprehension of patient needs for understanding regenerative medicine, cell, and gene therapies.

As of 8/20/2021, ARM Foundation for Cell and Gene Medicine learned that this event will be fully virtual. ARM Foundation for Cell and Gene Medicine will be present and Cynthia Kuan, Program Director, will be available for individual and group meetings. This event is for patient advocates, both individuals and organizations. Live streamed and limited in person participation.

This event, which is free for patients and caregivers, includes selections from The Disorder Channel featuring a curated lineup of short films addressing the day-to-day challenges and struggles of rare disease patients and their families. A panel discussion and virtual networking among the participants and attendees are highlights of the film festival. The films focus on two themes, Chasing Cures – Parents Fighting for Progress, Awareness and Advocacy and Siblings Supporting Siblings – Stories of Empathy and Understanding.

This 15- minute event is hosted by CISCRP, a nonprofit dedicated to educating the public and patients about the role that clinical research plays in public health. Try this new short-form presentation to keep up-to-date on subjects important to you.

For patient advocate organizations, individuals, health care providers, activists, and others who want to learn about newborn screening for rare disease and other conditions. This is especially important for people who want a condition to be added to a state screening panel.

Jennifer Briggs Braswell, PhD, Executive Director of ARM Foundation for Cell and Gene Medicine, will present "Educating the Public, Patients, and Families: how companies can more effectively communicate cell and gene therapies" in the afternoon of Thursday, August 26, 2021. She joins 1,200 rare disease professionals at the largest rare disease gathering globally.