Newborn Screening Bootcamp

September 15, 22, 30, 2021 | virtual

Hosted by EveryLife Foundation for Rare Diseases

A three-part virtual training series where you will learn all about newborn screening. Experts include:

• Dr. Cynthia Powell who will provide an overview of the RUSP review process,

• Dr. Melissa Wasserstein on the connection between data collection and improving racial and ethnic diversity within newborn screening, and

• Dr. Susan Tanksley to clarify how state laboratory prepares to add a new test to their newborn screening panel.

This event takes places across three different sessions in September (9/15/2021, 9/22/2021, and 9/30/2021) with a pre-session on Tuesday, September 14, 2021.

This bootcamp is for patient advocate organizations, individuals, health care providers, activists, and others who want to learn about newborn screening for rare disease and other conditions. This is especially important for people who want a condition to be added to a state screening panel.